The White Rail Idalia

08/01/2021

Please read and sign

Trikafta is on the March PBAC meeting agenda!!

Great news with Vertex submitting it for those aged 12+ with at least one F508del mutation.

From now until Feb 10 the community can submit comments supporting the funding of Trikafta. This is exactly when the community can make a difference - with Kalydeco, Orkambi & Symdeko there was a record breaking number of submissions and we need just as much support this time!

This is our opportunity to tell the government what it is like to live with CF and why we need Trikafta so urgently!

Comments can be submitted through the link below. We'll have more posts to come about how you can help.



https://www1.health.gov.au/internet/main/publishing.nsf/Content/PBAC_online_submission_form

20/09/2020

He's right.

14/05/2020

Spinich for dinner

13/05/2020

Bert Kaempfert playing loud and clear tonight.

08/04/2020

20/12/2019

Chicken glazed in Honey, Dijon mustard,garlic and Rosemary with Potato ham bacon and cheese Bake

09/12/2019

This is an Original post from The White Rail. There aren't many Original post nowadays.

06/12/2019

A single bean plant feeding the masses

05/12/2019

"The Ventures" are playing almost Live tonight.
No really it's just the Stereo turned up.

19/11/2019

The kids are laughing at my memory. They wont be laughing when there is no eggs under the tree.